So today I went to the school to get my son’s official diagnosis. I guess that is what you would call it. I think of a “diagnosis” as being something associated with a disease. Is autism considered a disease or disorder? I’m really not sure. At any rate several weeks ago I authorized the school to perform a battery of tests for my E to determine if he is autistic or not.
I didn’t have any questions when I was in the meeting. But I knew I would have questions afterward and that’s to be expected. Surprisingly I was only on the verge of a tear falling one time. It’s not that I’m sad about my son’s speech issue anymore or his “diagnosis.” Overall, I’m just a really sensitive person and I have a lot of things on my plate right now. Honey, I get teary eyed more often than I’d like to admit. But I digress.
I decided to do this post for anyone who cares. As it was explained to me, there is a spectrum of autism. If you think of it like 3 buckets, there’s Autism, Asperger syndrome and (click there~>) PDD-NOS. So E falls into the 3rdbucket. PDD-NOS stands for pervasive developmental disorder not otherwise specified. Yeah that's what I said. Basically my son has a developmental disorder but it's NOT really autism. They use PDD-NOS as a catch all for developmental delays and may even refer to the child as being "slightly" autistic. Yeah that's clear as mud right?
So if you have any information that you want to share with me, I'm all ears or eyes. I was told to start researching autism and join some parent support groups. The school will provide me with information about meetings and groups that would be of interest to me once the school year starts again.
7 comments:
Bianca my best friend's son also has PDD-NOS and if you want to friend her on Facebook, her name is Lakesha Carter Pickering. She can tell you anything you want to know about your sons disorder. One thing I know from what she went through is that you have to stay on top of the school and administrators to make sure that they are put in the right classes. I will let her know to be looking out for your friend request.
Oh o.k. THANK YOU!!!
You know that my son is on the spectrum as well, so I will send you some of the pages/organizations that have worked for me
I didn't know that until your cuz told me. Thank you!!!
Bianca,
I jumped right over here to show support. My oldest son, Eeny on the blog, is also on the spectrum. I have been his #1 scrapper to get him in the proper classes, showing up unannounced, and working with advocacy groups on his behalf. It's not easy. I'm not through yet.
I'm here for you and if you wanna call, email me, I'm available.
As far as I'm concerned PDD-NOS is recognized as a proper diagnosis, autism included.
The work continues.
Visit www.autismspeaks.org
Wow! Thanks for your support! Apparently it's a lot more common then I realized.
Hey Bianca...I dont know much about it but there was a little boy in my sons class with Autism and his mother was on top of EVERYTHING. She stayed in front of the administrators to advocate for her son.
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